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mally | mally62~AT~ntlworld~DOT~com
have been suffering chronic fatigue symptoms for over a year now,will it ever go away,or are we doomed to suffer for life,

1 March, 2010 at 19:13 - great britain

Kirsty | kar_keys~AT~hotmail~DOT~com
I just wanted to say thank you for such a great site, I'm 21 and have had ME for 4 years and thought I was coping until my latest relapse, which has left me bed bound on most days, Reading through this site has given me a lot of comfort with my symptoms and experiences, I'm lucky enough to have an amazingly supportive family and have been refered to see an ME specialist in Essex, but still find ME to be the hardest thing I've ever had to deal with, I've found the worst part of the illness is the brain fog and constant aches or pains, but its nice to know there is somewhere we can go to share our problems and worries, Thanks again for such a great site,

8 October, 2009 at 21:10 - Chelmsford, Essex, Uk

sharon | sharonshiney~AT~blueyonder~DOT~co~DOT~uk
Hi,I got diagnosed cfs/me only the other day,I am 35 and have 2 children,This is a horrible illness which im struggling to accept I have it,This site has helped me understand more about the illness,Just wished I found out sooner what I had as I have driven my mind mad,

21 September, 2009 at 07:40 - britain/west sussex

Mairtin Lynch | saffronsabu~AT~hotmail~DOT~com
Hi,
Ive suffered with CFS since 1993, I'm 29 now, It has effected me in so many ways, It has decimated my uni degree to the effect it took me 9 years to complete my law degree, I finished this summer until i took swine flu and it has brought my illness back in big way, I have been off work 7 weeks now, They don't understand as they dont see any obvious symptoms, My muscles feel so weak at moment that at night I almost feel numb , At times I think Im ok then I do something and realise that im ok as long as i do nothing, Im from Ireland and had planned to take my ny bar exam but dont know if my body could cope with a legal career, I feel so low at the moment, Has anyone any advice

16 September, 2009 at 05:15 - Ireland

Bev | Bbjo40~AT~aol~DOT~com
i have just been diagnosed with CFS/ME

14 September, 2009 at 19:35 - Lincolnshire

Sarah Innes | sarahinnes6~AT~aol~DOT~com
Hey you,I have saw myself how this affects you!! Yes its hard,very hard,but you always find a way to deal with things,You are a good friend,and i tell you not many to come by now a days!!,your website is amazing was having a look about,well done to you honey,xx

17 July, 2009 at 20:09 - Scotland

Mary | kerfuffle333-viva~AT~yahoo~DOT~co~DOT~uk
Hello

Having suffered ME (I prefer the term ME, as CFS does not go far enough in describing this terrible condition) for at least 7 years (diagnosed) and probably longer (undiagnosed),

I have been through hell and back with this conditon,and you are correct, not being believed makes it far worse, And thank god for make-up, as most days it covers the fact that I look and feel like a ghost,

If it is any comfort to you, I tried an osteopath who used the Perrin technique, I have the complication of having 2 degenerated discs on top of the severe pain from ME, The first Perrin treatment was good, second treatment, although it felt marvellous as did the first one, left me with crippling headaches,

I saw another osteopath who corrected the headaches,

I have had all kinds of massages and osteopathics, and although some felt good, some not, at the time, most did not help long term, You also have to be really careful with providers of these treatments, as I found to my cost, one osteopath in particular was not treating me as I should have been ie, using a massage before manipulation,

I also tried traditional chinese acupuncture, and spent about £800 on a course of treatments, and she said I would need at least one year of weekly treatment, I could not afford that, and as I was showing no improvement, so scrapped that,

I would also warn ME sufferers (and anyone else for that matter) off chiropracters, ME sufferers have problems specifically with connective tissue,and chiropracters are too extreme, I had very bad reactions to chiros,

It may be that you need to try different practitioners, but there needs to be a basic standardisation of treatments, especially with ME, in oder for the sick patients, already cash-poor, not have to spend a fortune shopping around in a hit and miss fashion,

So, if it's any comfort, you probably saved a lot of money from not using this Perrin treatment, as I did not find it helped, except to feel nice as a deep massage for an hour or so,

I hope this info helps save someone money,

Here's hoping they find a cure soon!

Mary

7 July, 2009 at 00:04 - Greater SW London

caroline | carolinedelia1~AT~aol~DOT~com
I was diagnosed 2 years ago and just wish that people would understand and not be so judgemental, They see me fine one day and not the next and find it hard to believe that I have an illness, I was off work for a year and have been back a year but am now off again and find it hard to walk some days, its hard to explain but I feel like my legs are jelly, I get so frustrated that I can`t lead the active life I once did, but this is the bodys way of telling me to slow down I guess! biggrin:

16 April, 2009 at 22:38 - UK

carol w | warnercarol~AT~hotmail~DOT~co~DOT~uk
I have just been told I may have this condition, in one respect it is a relief to actually put my problems down to an illness, when all tests keep coming up negative and I still feel so unwell, However if I do turn out to have this I am also worried about my future and coping with it, I have been refered back to my neurologist which i see next week to confirm it or not,

27 March, 2009 at 19:19 - UK

shell | shell4nick~AT~yahoo~DOT~co~DOT~uk
i have been ill since january i have had mri scans i think i have m,e as i can hardly walk please help

26 March, 2009 at 02:50 - england

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