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Laura | kirkyforyou2012~AT~yahoo~DOT~co~DOT~uk
Its great to find this website, I have just officially been diagnosed as suffering from Chronic Fatigue Syndrome (after 6 months) and although I've read how people treat you so badly thinking you are "faking it" - it never prepares you for the reality of your own friends and family not believing you are actually sick, Thanks for putting this website together,

1 March, 2009 at 03:07 - UK

TLC | terena66~AT~hotmail~DOT~co~DOT~uk
10 minutes ago when i happened upon this website i was full of words to enter on this guest book, now i am zapped of all energy and the fog is starting to rise, this now is the story of my life but i thankyou for creating a site which allows me to communicate with people who will know exactly where i am coming from and not tell me that ' maybe i just need an early night ' , I will return

23 February, 2009 at 07:49 - dorset

Lisa | lisakeel~AT~hotmail~DOT~com
For about two years I have been complaining of various health problems, My GP told me to take a holiday, work less but nothing worked, I changed doctors, By this stage i was in total dispair, Finally I found a doctor who would listen to me, I told her all the things that were going on (bearing in mind I had always been the type that was fit and healthy save the odd virus and a severe throat infection that I was told was something called quinsies) my new Gp decided that I had depression and to be honest I think by this stage i probably did, I was prescribed anti depressants and they seemed to make me worse for a while, then things improved so I thought I was cured, Ha not so within 3 months the symptoms had returned and seemed worse, I think the joint / muscle pains, headaches ( which I have never suffered with) the painful skin, the lack of concentration and the extreme exhaustion

7 January, 2009 at 06:54 - uk

care | caresapp~AT~yahoo~DOT~com
Im not sure where to start, I have asked my doctor if i could have cfs and he said he dosnt diag, cfs, I called specialists and was told they dont take cfs cases, how do you get help if you cant get a diag, I have been dealing with this for years and never been offered help just given meds and then chewed out for using them, I am currently not on any pain releif I deal with the pain by sleeping off and on all day but never good sleep, i have been treated like I dont or shouldnt hurt like I do,I rarely leave my house and rarely drive especially at night I have sooo changed my life in order to function, I am 45 going on 90, How do I find someone to treat this?

24 November, 2008 at 21:18 - missouri

terry | tel1966~AT~hotmail~DOT~co~DOT~uk
9 mths ago i was told i had ME, i cryed, tears of joy!! god now at least i knew what was wrong with me, now days i dont fight it i lean to live with it, i make the most of my good days and take drugs to stay awake ,im live and kicking if only just!!

3 November, 2008 at 07:22 - uk london

Wendy Harrison | becky-71~AT~hotmail~DOT~co~DOT~uk
This is the best and most informative website I have come across, I have suffered with M,E, for the past 10 years and have had nothing but grief form people who think I'm lazy and making it all up, Thank you for helping those that suffer know that it is real,

I hadn't realised that more than half the symptoms on the list is what I suffer with and I didn't know that they were connected to the illness,

Thank you for all your hard work, xxx

19 October, 2008 at 07:15 - Durham UK

Margaret | margaret~DOT~burton~AT~tiscali~DOT~co~DOT~uk
Hi, I was dignosed with CFS yesterday following several years of struggling to keep a full-time job and maintain a home for myself and my two lovely boys,
I finally had to pay privately to see a consultant for a diagnosis as work were pressuring me to find out what was my problem,
A couple of days ago work called to ask if I'd accept a couple of months salary to basically leave quietly,
Although I'm scared about what the future holds for me I have been very fortunate to find a local support group where I can speak to people who have gone through the same type of thing,
I have also discovered that if you get your GP to email the ME Association, they can provide a list of specialists in your area (NHS & private) who can give a diagnosis, They also hold a list of support groups around the country,
Hope this helps someone,


17 October, 2008 at 18:11 - Kent, UK

Morgan | sbbc4me~AT~verizon~DOT~net

I have been in severe pain for a year and a half, My latest diagnosis was fibromyalgia, chronic fatigue syndrome, arthritis, and TMJ, I'm only 16 and I feel like I have the body of a elderly person, I have not done anyhting with friends and family for over a year, I have had to start homeschooing because of the pain and severe pain, I feel like my life ahs been taken away from me, Do you have any suggestions on how I can feel better, I have been on all kinds of medicines including steriods and sleep aids, Please HELP!

8 October, 2008 at 05:56 - Martinsburg, West Virginia, United States

lisa martin-flaven | ljmf1968~AT~hotmail~DOT~com
thankyou for your site its been very imformative to me, i suppose i wanted to know i was not alone with this illness, many thanks, lisa,xxx

29 September, 2008 at 01:57 - rugby england

Kitty | adrica~DOT~moonhare~AT~gmail~DOT~com
I am so glad to have read this site, I am currently a wheelchair user when out of my home and am waiting to find out if I have CFS or MS, I had not realised that foot drop can be a feature of CFS, it is a symptom which I have and I was relieved to read that I am not alone in this,
Thankyou for your site and good luck in the future,

12 August, 2008 at 02:49 - Staffordshire, UK

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