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Frances McKay | francesmckay~AT~tiscali~DOT~co~DOT~uk
me for 17yrs the frustration is so bad the brain knows what it wants to do but the body will not follow suit you very seldom hear of m,e, in the media so do we not warrant any coverage

25 March, 2008 at 03:50 - Great Britain


Hannah Edmondson | hansie1~AT~o2~DOT~co~DOT~uk
Hi there, i have CFS for about a year now and i am recovering very gradually, There is hope, x

6 March, 2008 at 20:05 - Yorkshire


janet madge | madgejan~AT~btinternet~DOT~com
i am going deaf through my cfs has anyone else suffered this i have had cfs for 34 years

3 March, 2008 at 21:14 - england


Jacquie James | jacquie~DOT~james~AT~ntlworld~DOT~com
My 9 year old daughter is at home agian today,Although much better than when she was first diagnosed four years ago, she still has days when it all gets too much and I need to pace her, She has not been bullied about this,fortunately she was at her worst at her previous school, and it was quite 'cute' to see a six year old fast asleep every afternoon, until she just did mornings, Taylor is a bright girl and has been able to catch up with her school work, Her condition is definately a lot better, and we hope it is something that she will grow out of, I still get snooty looks from other mums when I take her younger brother to school and she is not going, I can almost hear them thinking "not off school again, that girls always ill!" Ho hum!

30 January, 2008 at 17:12 - Dorset, United Kingdom


Lori Lucas | lorilu4453~AT~hotmail~DOT~com
Thank you for your website, You have put in to words exactly what I feel and have experienced, I feel less alone, Again, thank you !!

26 January, 2008 at 02:08 - Arizona, United States


Judith | jsilvapulle~AT~hotmail~DOT~com
Hi

After googling CFS I found your website, After reading some of your pages, it brought me tears as its like someone else knows what I am going through right now - I'm scared, frustrated and sometime in denial,

I have recently been diagnosed with CFS, I'm 31 female, living in Australia, My boyfriend has been fantastic! Not much I can say about my employer - it's 8 o'clock on a Friday night and I'm still at work to meet deadlines!

25 January, 2008 at 15:00 - Australia


Gabby | gabs1604~AT~hotmail~DOT~com
I'm glad I have found your site! Im 19 years old and have had CFS for two years now, I'm lucky to have so much love and support from family and friends,but it's great to be able to hear from people who experience what you're going through, I can't keep a job because one week im OK and the next i cant get out of bed, People are so judgemental, so what your tired? get in line with the rest of the world,right? And i look fine, so how can CFS be a serious illness? I think I am slowly improving,I try to stay positive although some days I feel like completely giving up, Deep down I know I'll get better in time and know that ONE DAY i'll have my life back,

24 January, 2008 at 15:22 - Australia


steven | toddster99~AT~btinternet~DOT~com
i wanted to tell my 18 year story but when i press continue it tells me to go back and change a word that is not allowed and i dont know what it was, sorry

21 November, 2007 at 01:12 - North East of England


Kate | sufergirl23~AT~aol~DOT~com
i just found this website and last week i found out the i have cfs, im 15 and no one i no has it and i need someone to takte to, I hate having it and i dont no what will happen to me, so it kinda scarry i have to go back to the docs next week to find out more,

29 October, 2007 at 21:43 - us


jay | jayc~DOT~lawrence~AT~gmail~DOT~com
Sorry that should have gone on the forums, I had no idea there were any! :)

29 October, 2007 at 10:32 - United Kingdom

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Webmaster comments :
Hey, well now you know.. please feel free to join, you will recieve a huge big welcome from all of us...

~HUGZ~

Linda x



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