Please Support Us...
Imagine... struggling to get out of bed every morning.. feeling tired, dizzy and dysfunctional after a good nights sleep.. imagine... walking a short distance only to find that this excursion has totally exhausted you.. imagine.. having constant muscle and joint pain.. and feeling that someone has stuffed cotton wool inside your head...and when you try to read.. the words in a book.. just seem to swim of the page.. which then leaves you feeling dizzy.. and sick..
Imagine... these symptoms lasting for years.. how would you cope?
The above is just touching on some of the symptoms of Chronic Fatigue Syndrome.. and immune dysfunction syndrome (CFIDS), Myalgic Encephalomyelitis (M.E.) or Post Viral Fatigue Syndrome (PVFS)
To date, the so called diagnose of the above condition is only given and referred to by many consultants/doctors as a diagnose of elimination.... as no other "so called" condition could be found.
As a community of sufferers... where does that leave us????
That I can answer... I am am sure that I also speak for the majority of sufferers..... as we have not only become a shadow of our former self, and on a day to day basis we need to deal with the concepts of:
- Social Isolation
- Disbelief from the Healthcare Providers and Society
- Branded as Just Being Depressed or Lazy
- Struggling
- In Financial Difficulty
- Needing To Utilise Appropriate Care Packages
- Loss of Mobility
And the list could go on..... but with regards to what was once considered as being the norm, we as sufferers.. have now been confronted by a disabling... and debilitating.. scenario, which not only effects our health, it also it disrupts.. work, social and family life.
We as sufferers have been placed, well within many G.P's opinions... with a position of being able to receive a repeat prescription of antidepressants..... as they think we are only depressed... not ill...
On the contrary.... as not only are we ill... we as individuals want to work.... are not depressed... we are completely peeved of and frustrated... as time and time again we try to find our feet so to speak... only to find that we fall flat on our face.
Due to the miss interpreted label that society has interpreted ... this factor itself was with regards to the , negativity that the N.H.S promoted with regards to the factor of C.F.S/M.E itself..... as in the 1990's it was recognised as ~yuppie flu~ and merely an excuse for the overworked "high flyers" of society to take some time off from work due to stress...
Trust me!!!! myself nor many thousand sufferers have never ever been regarded as "Yuppies" only hard working individuals with household bills to pay at the end of each month... but as we speak, It is now estimated that there are up to 240,000 with (C.F.S.) in the UK. It can affect men, women and children from low income and minority communities... Mainly developing between early twenties.. and mid forty's.
Please help me to help others , through no fault of there own who worked hard, only to find that there conviction was only based on a level of morals..... as in pride... and refusing to be a burden on society, as being unemployed.... which within itself... only helped the government to implement payment, due to the taxpayers contributions to finance, unemployment, drug rehab.... asylum seekers, alcoholics.... and to date every burden on society who makes a fraudulent claim... for benefits....
Now as a fellow (used to be) tax payer... I am asking for financial help.... as many years ago, when I was first diagnosed with C.F.S/M.E, I searched the internet looking for answers.... (as one does) only to find many websites with a list of medical jargon... panicked when I did not find one of my symptoms listed...
I have set up this personalised website.... and Support Forum with the help of my friends... with intent to help, guide and support fellow sufferers... as once upon a time... I and many others like me struggled... now we are a team..
Please find a space within your heart to not only, empathise with our condition.... but to place a small donation to help to keep others so called outlet of survival such as the main website and forum alive.... as without your help financially.... I am now struggling financially to support such a personalised website & forum...
This website & forum is to date a non profitable informative avenue of empathy , support and help.... as financial gain should never be relevant due to the suffering of others.... including myself..... and with regards to all monies received.... this within itself will be redirected towards the costing of running the website & forum and the remainder will be diverted to various "charities"
If in fact you wish to advertise your website or business within the site itself, then feel free to contact myself ..... and all enquiries will be answered as soon as possible....
As I bid you as readers of my post, farewell, I am currently on my knees begging for financial support to keep the dream of normality alive, not only for myself... but for thousands of other sufferers also.... perhaps the webpages, may lead you to a realm of understanding.... and if the shoe was on the other foot, so to speak..... would you as an individual foreclose on on anothers avenue of help and support as in a personalised website and forum???
Me thinks not....
Please help me to help others......
All donations are gratefully received....
~HUGZ~
Linda xx
