Principles of Energy Consumption...
Before... the onset of this condition.... yip!! you were a superhero!!! maybe... much like myself... held down 5 jobs... my main job... consisted of 25 hours per week.... and 4 cleaning jobs... in between... then... the housework... looking after the kids... school run, making dinner.. etc... but somehow... I coped... even managed to get out on a Saturday night... yippee!!!! financially I was comfortable... more comfortable than others... but.. I worked hard... yes... I am a single parent... and I was doing well for myself..
Then...
"POP"
My bubble burst.....
The lifestyle... that I used to take for granted... has gone...
Acceptance.. will never be a relevant factor.... as frustration... and helplessness... steps in... the past... tends to become our dream... and to obtain that dream... we then tend to live in a world of unreality... but regardless... reality rears.. it's ugly head.. from time to time.... which I find hard to cope with....
Slowly... but surely... the above tasks... which I did without... question... have quickly diminished...
Now... I am struggling to work... 16 hours a week... never mind the household tasks... I try... to do them bit by bit...
At the moment... my lifestyle... is overwhelmed... by work... I go to work... try to do what is required of me.. then come home... totally exhausted by the effort... rest, get better... work again...exhausted... my lifestyle has become a vicious circle.... as I also have my son... who is only 7 to take care of... who is entirely dependent on me...
Pacing.... is highly recommended... to try to combat the effects... of CFS but within reality... of my circumstances... and many others... we are not in the position to... so therefore... our energy levels... are directed towards our children... which then leaves ourselves... at a loss... we are then left without the energy... to see to our own individual needs...
Slowly... we cut out everything within our lifestyle... it becomes... a coping mechanism... but the reality of the situation... is that we then only tend to live an existence.... not a life...
Yes... before you ask... CFS is starting to control me... for now... I seem to have lost the battle.... but I "WILL" regain that again... I now have a tendency to be bitter to others... who can get on with there lifes, and secretly wish... I was in there shoes.... I was absent from work.. for 7 months, but in that time... with the decreased income... got myself into a lot of debt... I robbed Peter to pay Paul...and can't seem to pay Paul back again...
2 years... after the onset of my illness... I'm getting help....aarrgghh!!!! too late... my lifestyle is a mess... it'll take some time... to adjust...
Starting to think about something tho... housework... based... before hand... when I had a good day I seemed to overdo things...
Firstly...
- Plan your time...
- Question each job that you are doing...
- Eliminate... unnecessary jobs...
- DO... Ask for help...
- Set realistic standards... for you're own well being...
- Alternate between sitting... and standing jobs...
- Sit... whenever possible... to dress... etc...
- Pay particular attention to good posture...
- Do NOT carry heavy loads...
- AVOID... bending and stretching....
- And STOP!!!!! before you are exhausted....
Makes... sense.. yeah.. but somehow, we never seem to adhere to this... as amidst our condition.. we .. well.. think we are in control... but to be honest... no!! we are not... thought... is a process.. of the mind.. reality is a concept... and within this concept... we somehow... have to touch on reality... now... and again.. and to survive this aspect we have to adhere to what is recommended...
WORK AREA...
- Whenever the condition allows... use both hands.. in opposite, symmetric motions while working... vertical or horizontal paths are tiring...
- Layout work area... within normal reach.. and arrange supplies... in a semi circle..
- Normal reach is within 21"
- Articles.. used frequently stored within normal reach...
- Articles.. used not so frequently.. within maximum reach...
- SLIDE... do not lift and carry....
- Use table with wheels...
- Slide pot out of sink..
- Use a hose... to fill pot...
USE FIXED WORK STATION.....
- Have a special place to do each job... with supplies.. and equipment at hand...
- Duplicate items... measuring spoons... etc...
- Preparation.. and clean up areas...
- Mixing and baking centre..
ELIMINATE UNNECESSARY MOTIONS....
- Use the smallest amount of work element...
- Select equipment.. that may be used for more than one job...
AVOID HOLDING...
- Use utensils... that rest firmly.. and that are secured by suction.. cups... clamps...
- Buttering board...
- Vegetable board...
- Damp tea towel...
- Flat bottomed measuring spoons...
But to be fair... the above is a guideline... of what should be adhered to...
Within reality... I have my own guidelines...
- If it needs thought... then it's dismissed..
- and.. if I avoided the things that I struggle with... then I cope...
Somehow.. through the years... we all have to adapt... we gain coping mechanisms.. to survive... some right ... some wrong... but deep within they work... and until proven otherwise.... we will continue to survive... whatever way we see fit....