CFS/M.E Support Groups...

To date... Chronic fatigue syndrome.. (CFS) is a debilitating and complex disorder and those affected.. function at a substantially lower level of activity than they were capable of before the onset of illness... in addition to various nonspecific symptoms, including weakness, muscle pain.. impaired memory and/or mental concentration.. insomnia.. and post-exertional fatigue lasting more than 24 hours...

Whilst many other C.F.S patients have reported various other symptoms... to include... include abdominal pain.. alcohol intolerance... bloating, chest pain.. chronic cough.. diarrhea.. dizziness.. dry eyes or mouth, earaches, irregular heartbeat, jaw pain.. morning stiffness.. nausea.. night sweats.. psychological problems (depression, irritability, anxiety, panic attacks).. shortness of breath... skin sensations.. tingling sensations.. and weight loss...

CLOSE YOUR EYES AND IMAGINE... SUFFERING ALL OF THE ABOVE...

THEN YOU FIND OUT AFTER A DOCTORS VISIT THAT YOU BECOME A VICTIM OF DISBELIEF!!!!!!!

AAARRGGHH!!!!!!!

This is a concept that every C.F.S sufferer has to deal with... especially just after the onset.. of illness.... eventually they are diagnosed... but unfortunately... some sufferers have been lost in the system of disbelief... and to be honest tend to clutch at straws.... this is where self diagnosing comes in.... this to be honest... is not such a great idea... always consult your G.P.. as there are many other conditions which portray... similar symptoms...

To include...

There are no other medical factors... which result in my poor health.... and yes... I have been diagnosed... with C.F.S...

WHERE DO I GO FROM HERE?????

This is where a support group becomes helpful...

Yes... I wanted answers... someone to talk to... I felt so alone... it took me a while to find a support group... and I'm so glad that I did....

I searched the internet.. and eventually came across ACTION FOR M.E. they had a telephone number so that I could phone... and at that particular point in my life... I was newly diagnosed... lost in a world of disbelief... and they became my lifeline....

Action for M.E. is the UK's leading charity... which is dedicated to improving the life's of people with M.E.. to include

WHY JOIN A SUPPORT GROUP?????

I suppose.. this comes down to personal choice... but within myself... I didn't feel alone with my battle... to combat C.F.S... instead... I felt that I had located a resource... which enabled me to undertake.. a level of understanding... and also at a level.. of reliability... and convenience...

Although... my support is only a phone call way.. there are many local support groups... within your area.. but unfortunately... I do not have access to any of them... I do not drive... and my local support centre.. just isn't so local... but as a whole... many C.F.S patients may find it therapeutic to meet with other people who have this illness and in general.. this can be achieved.. by joining a support group...

A beneficial support group should include...

Some... may find that a support group... may add to their stress... rather than relieving it.... but again... it all comes down to personal choice.... although... most support groups are free... they may... collect voluntary... donations... to cover...basic expenses...

I had a thought.. a while back to start a support group in my area... as I know of a few people nearby.. that would benefit from the group... and to be honest... I think it would also be beneficial to myself.... I'm going to look into it... and once I have the information... I will keep you posted....


With regards to the above:

Yes, I have now established a support group... and this can be found on the forum that I've installed on this site...

Feel free to pop in, even just to say hello... and yes, you will be made to feel welcome.. no matter if you've been diagnosed or not, or you are a carer for a C.F.S./M.E. sufferer, or even if you are just looking to have a good old fashioned moan.. (well it is allowed) ~HUGZ~

Within this forum, you will receive advice, support and a shoulder to cry on.. if and when needed. The only exclusion is the factor.. that we do not provide hankies... when the tears are running down your face... so, I am afraid that you will need to use your sleeve... but seriously, there will always be someone there TO help and if not immediately, shortly after.. to give you the support and understanding that you're looking for..

And most importantly.. you will be amongst friends... who care, understand.. and will never judge the trait of negativity which surrounds this debilitating illness... regardless!!!!!

Personally speaking, before the forum was up and running, I used to think that I was going crazy... and everything was in my head... but if that is the case.. there are more crazy people out there than first imagined...

And why???

Because that is what the Government, society and the N.H.S have labeled us as... well, perhaps I have used the wrong terminology... as according to to them, we are only depressed...(but to me it is just as bad) and yet they continue to use their get out clause... of trying to label us... and yet they try to continue to prescribe anti-depressants...

If that was the case factor... and we were only suffering with depression... do you not think that with a tablet or 3 that we would have been cured by now??? instead we as a population of sufferers.. are growing everyday...

The N.H.S themselves, only a short time ago, launched a campaign to raise awareness of mental health issues... as in "see the person not the label"

So why are we being predominantly diagnosed as depressives... labeled then dismissed ?

Why did the N.H.S launch such a campaign of awareness when they struggle to accept that C.F.S/M.E is a real illness suffered by real people.... and not one of depression...as they would like it to be for so called paperwork, as within this aspect it is easily filed away...

To date it is up to us as sufferers to get together as a team and dissolve their so called prognosis... and premeditated label of negativity...

Why should we suffer the consequences of there premeditated label of "yuppie flu" yes, I know... the terminology as changed.. to C.F.S., M.E, etc...

But regardless... the label of "just being tired, lazy and depressed" has not...

Personally speaking, I have lost everything.. my hopes my dreams and my future...

What about you???


CFS Support Forum

Online support: 24/7
Which to-date, hosts 575 members (October 8th 2008), which consists of sufferers and carers alike...

Website: http://www.chronicfatiguesyndromeforum.me.uk


Action for M.E.

Telephone support: 0845 123 2314
Mon - Fri: 11am - 1pm
Monday evenings: 6.30pm - 8.30pm

Website: http://www.afme.org.uk


The ME Association

Telephone support: 0870 444 1836
ANY day: between 10am - 12noon, 2 - 4pm, 7 - 9pm

Website: http://www.meassociation.org.uk


Bath Area M.E. Support Group

Help, information and support for people with M.E. in Bath and the surrounding areas...

Website: http://www.bathareame.org.uk